Most patients with MS have questions about their disease. They are also concerned about how this condition will affect their lives. Doctors can usually address most of these questions and concerns. However, there are some patients' questions that do remain unanswered -- because they are never asked!

This is unfortunate because patients' questions can play an important role in managing MS.

Patients who ask questions tend to get answers. Answers reduce stress and anxiety. Reducing stress and anxiety makes it easier to cope with a chronic illness. Patients who ask questions are usually better informed about their disease. They also understand more about how their treatments are supposed to help them. These patients are more likely to comply with their treatments. People who ask questions usually feel more of a partnership with their doctors as well.

So, what keeps some patients from asking questions? Some people feel intimidated in medical situations.

They "freeze" and forget what they wanted to ask about. Others worry that their questions might seem foolish to the doctor. And some patients regard doctors with such high esteem that they believe it's inappropriate to "question the doctor."

If you're one of these people, it's time to rethink your position. Asking questions about MS is not only appropriate, but also essential to good healthcare. Any question is a "good" question if the answer will provide information you need to know, or just want to know. If you "freeze" when you're face to face with your doctor, plan ahead. Before the appointment, write a list of questions you want the doctor to answer. When you meet with the doctor, hand him or her the list.

It is normal for people with MS to have all types of questions. Here are some examples. As you read them, think about what you would like to ask your doctor.

What does "autoimmune" mean?

Can you please explain what causes demyelination?

What would plasmapheresis (plasma exchange) do for me?

What do the results of "evoked potentials tests" tell you?

Could fatigue keep me from working full time?

Can I get pregnant?

Is the medication I need very expensive?

Is this going to affect my eyes?

Is it safe for me to drive?

(These kinds of questions may be the hardest to ask. Sometimes the best way to start is by saying, "I need to ask you a question about something personal.")

I've heard that MS can cause impotence. Is that true?

Can you help me with depression?

Is it normal for MS patients to have so much trouble remembering things?

Can you recommend a book about multiple sclerosis?

Do you know of a local MS support group?

If I have a question later, can I call you or send you e-mail?

Is there anyone else on your staff I can call when I have a question?

Seeing the doctor soon?

To get the most out of the time you spend together, take time to jot down these lists:

Write a list of your symptoms.

1. When did they start?

2. What seems to trigger or relieve them?

3. Do they relate to stress, medication, or lifestyle changes?

Write a list of your questions.

1. Put your most important questions first on the list. This way, even in a brief appointment, the doctor can address your most pressing concerns.

2. Some people fax or mail their list to the doctor ahead of time.

Seeing a doctor for the first time?Write a list of your medications.

1. Include all prescription and over-the-counter products such as vitamins, alternative remedies, laxatives, sleeping pills, and antacids. Record the dose and how often you take it.

2. You may fill out the chart below, photocopy it and give it to your doctor.

3. Keep a copy for yourself in case you need to use it again.

Medication Why You Take ItDoseTimes Per Day

First published September 1, 2001
Last updated May 5, 2003
Copyright © 2001 Accordant Health Services, Inc. All Rights Reserved.

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